Tuesday, March 17, 2009

No, I'm NOT having Surgery Today!

So I have this defiant song from Avenue Q running through my head... "No I'm NOT wearing Underwear Today! No I'm NOT wearing UNDERWEAR TOday!...."

But of course, I really do have on underwear. I'm just not having surgery today ;-)

The oncologist does not feel like any kind of surgery is indicated at this time. She said, "Karen, you don't have cancer. Lets watch and see what happens."

It was a really difficult message for me to comprehend there in the office. My OB/GYN told me she would send me to see the oncologist, but that I would just be hearing the same thing that she already told me. I believed her. I believed it so deeply that it was hard to make myself even go to get the second opinion. I believed it so deeply that I was aggressively working to prepare myself for this terrible surgery...or some kind of surgery anyway. All the questions I had prepared in advance were written from the perspective of someone planning to have some kind of surgery. Everything I read pointed that direction. Everything I heard pointed that direction. And then I had all these opinions from many different folks...all well intended, and all rooted in personal experiences, beliefs, perceptions, etc. Some were staunch surgery believers. Some were staunch surgery opposers. Most fell somewhere in-between.

Tomorrow I will go do a follow-up ultrasound to check on the ovarian cyst, and also to check on the current status of the fibroid and to see what or how much remnant of the tumor still exists, if any. Most likely that will simply be compared with the ultrasound done last December, prior to the tumor resection. Then we'll look at it again in 4-6 months and again another 4-6 months after that. If it grows then she may change her mind...she doesn't like it when things grow. But for now, all is good.

So happy ;-)

Lessons learned:
  • Always get a 2nd opinion, no matter what
  • Sometimes little sisters know what they are talking about
  • It pays to be informed when you go talk to a specialist
  • Be weary of doctors who burn your butt
  • Preparing for the worst is a challenge--preparing for anything is harder

Sunday, March 1, 2009

Mullerian Adenofibroma

In January, I had a cervical mass removed. The pathology report came back indicating the tumor was an extremely rare benign fibroid called Mullerian Adenofibroma. No cancerous cells were found, however I think it is noteworthy that mixed mullerian malignant tumors often have areas that look like the mass I had removed. Also, not very much is known about the benign form of these tumors. Therefore, it is recommended (by my ob/gyn, the pathlogist, and two doctors at the Mayo clinic) that I go back to the hospital to have the remainder of the tumor removed.

I've been spending endless hours researching, trying to understand what little is really known about this very weird situation. The option that was recommended to me is to have a hysterectomy. But if I want to be a little less drastic, we could first try doing a deep cervical cone resection, to see if that might get all of it. My next step will be to go visit a gyn/oncologist to review my health history and to help me make a final decision about what steps to take to remove it.